Healing my eczema naturally : Gut health + nutrition + lifestyle

I’ve had eczema my whole life, and I can’t even tell you how many derms I’ve seen.. BUT I’ve made some recent progress, and even though I’ve never really wanted to share with the whole world about my crusty red skin problems – I know I can’t be the only one. 

What is eczema? 

Eczema, also known as atopic dermatitis, is a common chronic skin condition characterized by inflammation, redness, itching, and the development of rash-like symptoms. It is a non-contagious condition that often begins in childhood and may continue into adulthood. Eczema can vary in severity and can have periods of flare-ups and remissions.

Key features of eczema include:

  1. Itching: One of the hallmark symptoms of eczema is intense itching. Scratching the affected areas can worsen the condition and lead to skin damage.

  2. Inflammation: Eczema is an inflammatory skin condition, and affected areas may appear red, swollen, and irritated.

  3. Rash: A rash is common in eczema and can take different forms, including small raised bumps, blisters, or dry, scaly patches of skin.

  4. Dry Skin: Eczema often results in dry skin, and in severe cases, the skin may crack and bleed.

  5. Common Affected Areas: Eczema can occur on various parts of the body, but it is often found on the face, hands, wrists, elbows, knees, and the back of the knees.

  6. Triggers: Certain factors can trigger or worsen eczema symptoms, including exposure to irritants, allergens, stress, weather conditions, and hormonal changes.

The exact cause of eczema is not fully understood, but it is believed to involve a combination of genetic, environmental, and immune system factors. Individuals with a family history of eczema, allergies, or asthma may be more prone to developing the condition.

Management of eczema typically involves avoiding triggers, practicing good skincare, using topical medications (such as corticosteroids), and, in some cases, systemic treatments prescribed by a healthcare professional. While eczema is a chronic condition, many people can effectively manage their symptoms with appropriate care and treatment. If you suspect you have eczema or are experiencing persistent skin issues, it’s important to consult with a healthcare provider for an accurate diagnosis and personalized treatment plan.

So let’s dive into the time-line of my journey with eczema. This is different for everyone – but there were a few specific things that over all contributed to the problem. 

First signs – 

My mom has always said that I developed the issue once I stopped breast feeding. The rashes were always around my arms. As I got older I feel like I was so used to it – And it would seemingly go away miraculously in the spring and summer, but of course, It would always came back the next winter.. Around the time I was in first grade I had issues with ear infections and was over exposed to antibiotics – and in my mothers words “You basically didn’t have a bowel”. Great. I don’t really remember all this, but in all honesty, It doesn’t matter to me. I realize the information I know now is only starting to come into the mainstream. Anyways back to my crusty dusty problems – The spots on the insides of my elbows would be entirely crusted and red. Pretty much weeping through all my clothes and getting lint stuck to them every day. I also would get cracks in the corners of my mouth, lovely , I know. This was probably at its worst around middle school. 

Into high school I started to see a new doc and derm. This was where topicals and steroids were introduced into my “treatment” or at least remedy and routine. This started to get me through the winter flairs, but slowly and surely stopped being less effective. For those of you who have never heard the term TSW – It’s a thing – And if you are using any kind of steriod cream PLEASE start weening yourself off them. I was on the steriod roller-coaster until this past year.. It can be a viscous thing to quit, especially when the eczema is there to begin with. I’m going to get back to my journey, but we need to go over exactly what topical steriods are and exactly how they work.  

What are topical steroids?  

Topical steroids, also known as corticosteroids, vary in potency. The potency is often classified into different classes. Here is a list of topical steroids in order of potency, from low to high:

  1. Low Potency:

    • Hydrocortisone (e.g., Hydrocortisone 1%)
  2. Medium Potency:

    • Desonide
    • Fluocinolone acetonide
    • Triamcinolone acetonide
    • Mometasone furoate
    • Hydrocortisone valerate
    • Alclometasone dipropionate
  3. High Potency:

    • Betamethasone dipropionate
    • Betamethasone valerate
    • Clobetasol propionate
    • Halobetasol propionate
    • Diflucortolone valerate

It’s important to note that the potency of a steroid can influence its effectiveness and also the risk of side effects. The choice of a specific topical steroid depends on the severity and location of the skin condition, as well as individual patient factors. Always use topical steroids under the guidance of a healthcare professional.

Cortisol plays a crucial role in the mechanism of action of topical steroids. Topical steroids are synthetic drugs that are designed to mimic the actions of cortisol, which is a natural steroid hormone produced by the adrenal glands. Here’s how cortisol’s role is related to the effectiveness of topical steroids:

  1. Anti-Inflammatory Properties:

    • Cortisol, and by extension, synthetic steroids in topical preparations, are potent anti-inflammatory agents. They work by inhibiting the production of inflammatory mediators, such as prostaglandins and cytokines. This anti-inflammatory action helps to reduce the redness, swelling, and itching associated with conditions like eczema.
  2. Immune System Suppression:

    • Cortisol is known for its immunosuppressive effects. Similarly, topical steroids suppress the immune response in the skin. In conditions like eczema, where the immune system is overactive and contributes to inflammation, this immunosuppression helps to control the abnormal immune response.
  3. Vasoconstriction:

    • Cortisol and synthetic steroids have vasoconstrictive properties, meaning they can cause blood vessels to narrow. This vasoconstriction helps reduce blood flow to the affected area, leading to a decrease in redness and swelling.
  4. Cellular Effects:

    • Cortisol and synthetic steroids can modulate the function of various cells in the skin. They influence the activity of immune cells and other cells involved in the inflammatory process, helping to restore a more normal balance.

In summary, cortisol’s natural anti-inflammatory and immunosuppressive properties serve as a model for synthetic topical steroids. These medications aim to replicate cortisol’s effects to alleviate inflammation and symptoms in conditions like eczema when applied to the skin. It’s important to use these medications judiciously and under the guidance of a healthcare professional to minimize potential side effects.

 

OK – I know that was a lot – And If you already knew all that, congrats, but I didn’t truly understand this until last year – After having used these creams for well over 10 YEARS. Derms don’t really tell you all of this information when prescribing these either..  So about the side effects- Let’s dive into another little lesson on  the side effects of topical steriods. 

Topical steroids, when used appropriately under the guidance of a healthcare professional, can be effective in treating various skin conditions. However, prolonged or improper use can lead to side effects, including those associated with Topical Steroid Withdrawal (TSW). Here are some potential side effects:

  1. Skin Atrophy:

    • Prolonged use of potent topical steroids can lead to thinning of the skin, making it more fragile and prone to bruising.
  2. Striae (Stretch Marks):

    • Thinning of the skin can contribute to the development of stretch marks, especially in areas where the skin is stretched, such as the groin or underarms.
  3. Telangiectasia:

    • Long-term use of topical steroids may cause dilation of small blood vessels near the surface of the skin, resulting in the appearance of red lines or patterns (telangiectasia).
  4. Perioral Dermatitis:

    • In some cases, the use of topical steroids around the mouth area can lead to the development of a specific rash known as perioral dermatitis.
  5. Hypopigmentation or Hyperpigmentation:

    • Changes in skin pigmentation, including lightening (hypopigmentation) or darkening (hyperpigmentation) of the skin, may occur.
  6. Topical Steroid Addiction/Withdrawal (TSW):

    • Prolonged use and sudden discontinuation of potent topical steroids can lead to a phenomenon known as Topical Steroid Withdrawal (TSW). This may result in a rebound flare of the skin condition, redness, burning, and intense itching.
  7. Tachyphylaxis:

    • Tachyphylaxis refers to a decreased response to a drug after repeated use. It can occur with topical steroids, leading to reduced efficacy over time.
  8. Secondary Infections:

    • Prolonged use of topical steroids can impair the skin’s natural barrier function, making it more susceptible to bacterial, viral, or fungal infections.

It’s crucial to use topical steroids according to the prescribed strength, duration, and frequency provided by a healthcare professional. Abruptly stopping the use of potent steroids can contribute to TSW, so it’s important to follow a tapering plan if discontinuation is necessary.

If you experience any side effects or concerns while using topical steroids, it’s essential to communicate with your healthcare provider, who can adjust your treatment plan accordingly. They can provide guidance on proper use, monitor for side effects, and explore alternative treatments if needed.

What is TSW?

Topical Steroid Withdrawal (TSW), also known as Red Skin Syndrome (RSS) or Topical Steroid Addiction (TSA), is a skin condition that can occur as a result of discontinuing the prolonged use of topical corticosteroids. This phenomenon is characterized by a rebound or worsening of skin symptoms after stopping the use of topical steroids. TSW is not an officially recognized medical diagnosis but is acknowledged in the dermatological community.

Key features of Topical Steroid Withdrawal include:

  1. Rebound Flare:

    • After discontinuing the use of potent topical steroids, individuals may experience a rebound flare of their skin condition. This can lead to increased redness, inflammation, burning, and intense itching.
  2. Spread of Symptoms:

    • Symptoms of TSW can extend beyond the initially treated areas and affect surrounding skin.
  3. Erythema (Redness):

    • The skin may become intensely red, resembling a sunburn-like appearance.
  4. Burning Sensation:

    • Individuals undergoing TSW often report a burning or stinging sensation on the affected skin.
  5. Itching (Pruritus):

    • Severe itching is a common symptom of TSW and can significantly impact the quality of life.
  6. Skin Flaking and Peeling:

    • The skin may peel or flake as it undergoes changes during the withdrawal process.

TSW is believed to be associated with the body’s adaptation to the prolonged use of topical steroids, leading to changes in the skin’s structure and function. While TSW is not universally accepted as a distinct clinical entity, some individuals report experiencing these symptoms after discontinuing potent topical steroids.

It’s important to note that TSW is a complex and poorly understood phenomenon. If individuals suspect they are experiencing TSW, it is crucial to seek guidance from a healthcare professional, typically a dermatologist. A healthcare provider can assess the situation, provide appropriate care, and develop a management plan, which may include gradually tapering the use of topical steroids to minimize the risk of withdrawal symptoms. Additionally, alternative treatments may be explored based on the specific skin condition.

 
We’re going to skip forward in our timeline now – I’m 24, It’s 2019 and I’m living in Portland. My eczema seems to be manageable, and I’m using Claritin and hydrocortisone cream from time to time. Then around the beginning of 2020 I started to explore a keto diet as a way to lose weight. This was also the first time I became interested in my hormones and possibly ditching birth control. My eczema began to go away. Or so I thought… 
 
Fast forward again – It’s September of 2023 and my eczema slowly starts to creep back. This time starting on my face around my mouth, eyes, neck and arms. I’m not longer doing keto, and I had also taken my IUD out. Because my eczema was on my face I was desperate to make it go away again. So what did I do? I broke out the steriod creams I had sworn off. BIG mistake. It helped for about a week, then my eczema faired worse than I could ever remember.  At one point, my lips were so split I looked like the exorcist. It was so pitiful. Couldn’t even eat a sandwich. I was also convinced I needed to start a moisturizer withdrawal – And I don’t recommend this.
 
Eventually I caved and went for a tube of Carmex. Surprisingly, this was super soothing and actually helped for a period. But like everything, It stopped working. So here I am – It’s early January and I’m at a breaking point. My Lips are so far from healing I’ve forgotten what they look like. Because I had been rubbing my eyes, I was waking up with them nearly swollen shut every morning.   
 
Now I live a busy life to say the least, and I share my life on social media, so having my confidence stripped from me.. Really sucks. I started to self isolate and avoided going out in public entirely. I don’t blame people for staring, but it does wear you out emotionally when the issue that seems to already consume your life is the first thing somebody notices about you.  Luckily for me, I have an incredible support system who comfort me about it all. 
 
It was at this time I started to research about what was new in the eczema world. I got connected with the Oregon Medical Research group and almost immediately got a consultation.  Despite the location of my eczema, It didn’t fit into the parameters or qualify for their current studies. The derm I spoke with told me something that I’d heard more and more from that community – Eczema was a genetic condition and there wasn’t anything I can do about it. The treatment options were either topicals or newly developed shots like Dupixant . At first this was nice to hear. I had certainly drove myself nuts at one point or another thinking I was eating something that was causing my eczema. Never truly getting to the bottom of it and giving up because food was so important to me. I really didn’t want to give up the things I thought I loved the most like bread and refined sugars. 
 
While this still may be true – Seeing as my eczema is still around and there is always the potential it could come back worse, I have made some progress lately. You see – It never sat well with me that there was “no” way for me to manage the symptoms, other than with a crazy expensive and frequent shot.  I’m nearly 30 years old, and at this point, my intuition is telling me that there’s something I’m missing.. Maybe this new shot is just like the treatments before it, only covering up the symptoms –  Not actually healing it. 
 
On January 7th, 2024 I woke up and had a well deserved little meltdown. My eczema was getting worse and I was at a new breaking point of frustration. I started off watching videos of people starting dupixent. This was a good reminder that I’m not alone, and some people are actually off worse, so I should really count my blessings. My lips were killing me and I was running out of Aquaphor! Zach and I took a walk up the street to Walgreens and grabbed a tub of Vasaline. On the way there we started talking about how we hadn’t been outside in awhile, and zach said “Yeah, I need to start taking my vitamin D again”. 
 
That’s when It hit me. Could I be vitamin deficient? Is there a link between that and why my eczema is seasonal? Is this the new rabbit hole I needed to find the cure to my eczema?
 
Zach and I talked about it the entire way home, and right when we got back I started looking for videos on YouTube. OF COURSE there were tones of super informative videos that had only been posted in the last YEAR. A community of holistic doctors have been studying the commonalities in people with eczema and the link between gut health and the skin. I highly recommend you watch the videos linked below – Should you have a chronic skin problem. 
 

That I was onto something, that’s what!

 

I related to soooooo much of this information. This was the first time anyone had connected the dots. The fact that I was born C-section and babies born this was are found to be lacking in the microbiome diversity found in those born vaginally. OR the fact that if you have ever been over exposed to antibiotics you’re microbiome can be compromised? Check, check and check. I fit the profile to a T! It was at this point I had to reconcile  with my bad eating habits… I was binge eating sugar everyday. Once I confronted this and saw it for what it was, I made the choice to try this new method seriously for 6 months to a year. If it doesn’t work and I get nowhere with my eczema, I’ll look further into the shot route. 

 

Next I started to map out my diet.. I had recently adopted a “I can eat anything” diet, and the holidays did NOT help. It was obvious I needed to stop eating refined sugar and grains almost entirely. I made an exception for fruit and some rice from time to time, but as of Jan 7th, I have been cooking at home and replacing the grains with veggies and leafy greens. I don’t plan on never eating those things again. A girls gotta have her pasta! But the goal is to limit them to once monthly if I can.  I also took a few ques from my keto days. Protein is my biggest focus, and I make sure to eat lots of grass fed red meat, organic pasture raised poultry, and sustainably sourced fish and seafood. I plan to write in more detail about my diet and the meals I prepare, but for now that concludes my new attitude towards food.

 

As for healing my gut? Well, it started with eating the right foods. And I have to say, from the day I started removing the sugar, grain and dairy from my diet I saw a significant difference in my skin and how itchy it was. And I’m currently only on day 10! Another important part of this transition has been picking the right supplements to treat the microbiome imbalance. 

 

My new supplement routine : 

  • Vitamin D2
  • Vitamin B3
  • Oregano Oil
  • Probiotic 225billion 
  • Omega 3
  • Butyrate 
  • L glutamine
  • Digestive enzymes  

Additional dietary supplements :

  • Apple cider vinegar 
  • Evening primrose oil
  •  

I recommend you invest in finding a great natural grocer. I buy all my supplements from Natural Grocers

I don’t take all of these everyday, but I try to listen to my body and do research behind every supplement and what it’s intended for. I also supplement with many skincare products to help maintain my skin barrier.  

To find my eczema holy grail skin care products click here 

Anyways, It feels great to be validated in my intuition about the link between diet and eczema, and the solution with this route is rooted in a healthier lifestyle OVERALL, so I’m really stoked on this.  Addressing my issue with sugar is going to set off a new perspective for me on eating and how I nourish my body. 

As for the effect on my lifestyle? Well, I have to say I’m spending a lot more time at home. Besides the fact I don’t really want to go out, It’s highlighted just how unhealthy some of my past habits were.. Like drinking everyday for example, was actually wreaking havoc in my life. Some times I like to joke that my frontal lobe only developed last year, and as funny as that sounds, I do think there is something to be said when you reach the age where self reflection becomes your friend and you don’t run from your insecurities anymore. But I feel like that topic is a completely new blog post altogether – So stay tuned for that!

 

I’ll need to check back with you all in a few months, but so far – I can feel and physically see my skin healing from within. Sure, the diet is hard, but I’ve needed to reinvigorate my love of cooking, and I see this as a huge opportunity! I’m slowly finding what works for me, and for the for the first time in a long time (maybe ever) I finally feel like I’m on the right track. 

 

I plan to update this post regularly as I move forward, and keep you all in-the-know with what I find! 

 

Please reach out in the comments below if you have any questions or additional resources you’d like to share with me!

 

Love, 

Lucy xx 

 

 

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